Wessex PSC is working with patients and carers to ensure their voice is heard throughout all aspects of the Collaborative's work.
The Patients Voice
Co-production, and co-design, with relevant stakeholders, including patients and carers, are founding principles of the Patient Safety Collaborative Initiative.
Wessex PSC is working to ensure that the patient and carers voice is heard throughout our work by appointing Patient/Carer Partners wherever possible including the PSC Steering Group, our Breakthrough Series Faculties for Sepsis, Transfers of Care and Physical Deterioration and a number of our working committees.
In Martin's story one of our Patient Partners explains what led him to get involved with Wessex PSC here.
An article by the national Healthwatch organisation titled "How are people’s views influencing health reforms?" can be read here.
ARISE+ The Wessex approach to co-design
Patient representatives have also been instrumental in helping develop the Wessex PSC Patient Engagement methodology “ARISE” which is a joint initiative undertaken with our stakeholder organisations to develop a methodology to promote effective Patient Engagement in all Quality Improvement / Patient Safety initiatives.
The ARISE model (Aims, Recruitment, Integration, Support & Evaluation) is based on cross industry guidance around the role identification, selection, support, coaching and development of volunteers to facilitate the recruitment of patient and carer representatives working with the PSC and with member organisations.
The ARISE+ documentation is available to download from the resources area on the right hand side of this page.
The Patient Experience Library (Founded by Anthony McQuillan and Miles Sibley)
The Patient Experience Library provides access to over 50,000 documents on patient experience and involvement including topics such as maternity, mental health and equalities.
The documents come from various sources including government bodies, health charities, patient voice organisations and academic institutions. The library helps access patient perspectives to inform commissioning or quality improvement initiatives at national and local level.
The search facility is available free of charge although only subscribers can download the documents. The library is available here.
‘How are you feeling today?’ - A Patient Engagement initiative by University Hospital Southampton NHS Foundation Trust
Through feedback from relatives and patients we wanted to involve and engage with them regarding deterioration. Complaints and Adverse event reporting had highlighted patients/relatives had raised concerns about deterioration but there was no trail of what had been actioned when these concerns were raised. This initiative provides opportunity for patients/relatives to raise concerns on a daily basis and these be attended to......it’s the patients perspective of whether they are improving.
The "How are you feeling today?" questionnaire can be downloaded from the resources area on the right hand side of this page.
Quality Improvement Partner Panels (QuIPPs) - South West AHSN
A new public involvement initiative designed to improve the quality of health and care services has been developed by the South West Academic Health Science Network.
Quality Improvement Partner Panels (QuIPPs) will support the work of health and social care organisations and innovators by ensuring the voice of the public is involved in improvement projects and innovation developments.
The aim of the panels is to provide support, advice and suggestions to quality improvement project teams or innovators in health and social care. These may be small improvements on wards, or in general practice and community settings, or on strategic planning for system wide implementation.
More information about the QuIPPs initiative can be found on the South West AHSH QuIPPS webpage here.
Other examples of, and perspectives on, patient engagement can be found on the following sites:
The NHS England Involvement Hub supports patients, carers, staff and the public who want to find out more about participation – both how to do it and how to get involved.
The Involvement Hub also includes a Learning and Development zone with details of learning courses available to patients and public as well as staff.
The NHSE Sign up to Safety site identifies the involvement of patients in their care as a top priority for the NHS, highlighted in the NHS Constitution and the NHS Five Year Forward View.
Sign up to Safety have developed a "Framework for Patient Engagement in Patient Safety" which describes three levels of patient engagement in patient safety across three levels of the NHS healthcare system. It also presents real-world examples of patient engagement in patient safety and applies these to the framework. A copy of the Framework document is available to download under the Resources tab on this webpage as is a copy of the Framework Table.
NHIR CLAHRC offer patients, carers or members of the public with an opportunity to get involved in research to help develop new treatments or to improve the health care people receive. Health research is often carried out as a partnership between the NHS and universities, as well as some drug companies and voluntary organisations.
In order that research is relevant, meaningful and well designed, the public need to be involved. This might be a patient with a health condition, someone who cares for a family member or friend with an illness, or have an interest in improving health. There are many ways in which they can contribute to health research.
Public reviewing with the National Institute for Health Research (NIHR)
NIHR have also produced an interactive course for new and experienced reviewers of health and social care research. The course covers reviewing in all contexts for NIHR research funding programmes, plus skills and activities required at different levels and stages of research. It is designed for public contributors who are committee members as well as public reviewers.
Researchers may also find this resource useful when writing research funding applications. It can be used as a tool to understand how to get your Patient and Public Involvement right first time! More information can be found on the NIHR website here.
Better Local Care (BLC) Vanguard is a new partnership between local NHS and care organisations, GPs and charities across Hampshire which all believe to be a better way to plan and deliver care for Hampshire.
BLC aims to put their local communities and partners at the heart of everything they do. They feel they cannot succeed on theirr own and must not only ensure that the views of local communities are a key driver to how they make changes but that they design these changes together with their local communities.
The five local Healthwatch organisations in Wessex (Dorset, Hampshire, Isle of Wight, Southampton and Portsmouth) came together with NHS England Wessex in 2015 to form "Wessex Voices", an initiative that aims to make sure local people are involved in designing and commissioning health services.
Together they produced a toolkit to support patient and public involvement in commissioning which is available on their website as is a video about their experiences.They have now extended this collaboration to focus on supporting people's engagement in cancer services and primary care commissioning.
Other resources from Wessex Voices include:
The Improvement Academy are a team of improvement scientists, patient safety experts and clinicians who are committed to working with frontline services, patients and the public to deliver real and lasting change.
As part of their Patient and Public Engagement work they have produced 3 brief manuals to help staff support patient and public involvement (PPI) in the improvement work they do. These manuals cover (1) Planning for PPI projects (2) Working with our patient panel (3) Budgeting and reimbursement and they have made these manuals available for public use via their website.
The Kings Fund - Experienced based co-design (EBCD)
The Kings Fund developed Experienced based co-design (EBCD) toolkit outlines a powerful and proven way of improving patients' experience of services, and helps you to understand how the approach can help you meet your aims. As well as step-by-step guidance, the toolkit includes videos of people who have taken part in EBCD projects. The toolkit also includes downloadable resources such as template forms, letters, presentations and other materials, to help you plan and carry out this approach.
If you would like to get involved in our work as a Patient / Carer Partner, or if you have any questions about the projects mentioned here, or any other aspects of the Wessex PSC, please contact us by clicking the button below: